Showing posts with label SLE. Show all posts
Showing posts with label SLE. Show all posts

Thursday, May 31, 2012

me and SLE

Assalamualaikum..

tetiba rasa nk share pasal SLE plak hari ni..to those yg follow story kehidupan aku yg merapu2 tu..msti tau aku adalah SLE patient..yes i am..alhamdulillah mine was at the mild stage..which is not really critical..but still i hv to be super alert and precautions myself as it can be critical..

last week i had my check up wth my specialist @ pantai medical centre..old memories splashing around in a sudden..how hard for me to go through all the hassles just to be diagnosed and confirmed that i hv the SLE..anyway..forget about it..what passed is passed :) ok back to the topic..all this while i hv to consume 2 types of medicine which is 1 tablet of 5mg plaquenil and 1 1/2 tablet of 5mg prednisilone..its consider low dose..but now..besides those 2 pills, doc. gave me extra prescription which 1 tablet of X once a week (aku xingt ler plak namanya..ekekek:D)..as i know it is to prevent osteoporosis..sounds familiar huh? yes..it is for bone..for info, 1 of the side effect when u are consuming a prednisilone for a long term, it may caused a reduction of bone mineral density..there is no other way for u to stop consuming prednisilone just to protect ur bone..no and never..full stop!

at the 1st time hearing that, i was seriously demotivated..but then i'm waking up..dont waste ur time just to be demotivated..common..u hv to be strong to fight wth the disease..yes i know there is no specific medication that can prevent / eliminate that SLE.once u've being diagnosed, forever u are SLE's patient..but dont be to scared to hear that..semua yg berlaku ni ada hikmahnya..yakin lah dgn ketentuan Allah..setiap ketentuan Dia adlh yg terbaik utk hamba_Nya..redha..berusaha dan bertawakal..bersyukur la sbb kt terpilih sbgai hambaNya utk diuji...insyaAllah..

i did received an emails..bulk of emails frm my readers yang senasib dgn aku..pengidap SLE..honestly aku bersyukur sgt sbb tahap SLE aku masih mild compared to them yang agk critical..kesian sgt kt dorang..so ape yg aku blh buat just encourage them to be strong..at ths moment, support is the best thing for them..aku doakan smga mrka jg akn kuat utk melawan sakit ni..

recently aku ade surf website SLE Malaysia..tp xjoin lagi jadi member..hehe..tp bykla info aku dpt dr website tu..slh 1 fakta yg menarik perhatian aku adlh emosi yg stabil adlh penting..so for me the best way to do it is go for HOLIDAY! hahahahaa..tu 1 of it la..tp ade byk lagi cara..depends on individual..lain org lain caranya..hehe..

1 impian aku buat masa ni adlh nak jejak ke Tanah Haram lagi utk menunaikan rukun Islam yg ke-5..insyaAllah ikut perancangan aku next year..tp perancangan Yang Maha Esa kita xtau..ape yg mampu aku lakukan skarang hanyalah berdoa agar dijemput utk mnjadi tetamuNya lagi..insyaAllah..hmm..kenapa nk cepat sgt? its all because of my SLE..as defined, SLE ni auto immune disease whereby ur body immune system having a dis-functionality..bhsa mudahnya antibodi di dalam badan yg sepatutnya protect body kita dr serangan organisma jahat/bakteria/virus telah memakan antibody baik yg diperlukan oleh body kita...so senang ckp sume dia bedal..when it happen, immune system kita will be at the very low level..dan kurang mampu utk protect body kita..ok relationnya dgn nk pegi Haji..kriteria wajib utk pegi Haji adlh msti ambik suntikan yg 3 tu..utk pesakit SLE chronic, sume suntikan tu xberi effect pada body..because beat by owner antibody..ade kecelaruan di situ..so bila xbole amik suntikan tu xbole la nk pergi Haji..pihak TH xnak la amik risiko kan..and high risk to the patient as well..kt Tanah Haram kan ramai sgt org..lagilah dangerous..1 of my officemate pnya sister experienced this..dia xdpt pergi skali dgn group jemaah Haji dia because dia adlh patient SLE yg chronic so dia xboleh amik that injection..kena tnagguh year by year smpai dia lepas utk amik suntikan tu...so tu la sebabnya aku nk cpt2 tunaikan kwajipan tu..mmg la Haji hnya utk yg berkemampuan dr semua segi.but at least aku berusaha..jgn la berserah tnpa berusaha..tambahan dh pernah jejak kaki ke Tanah Haram last year utk Umrah..lagi la kuat semangat aku utk pegi buat Haji pula..smga Allah makbulkan hajat hambaNya ni..insyaAllah..amin...

okla..pnjang sgt dh ni..yg xberkenaan for sure akn boring nk baca...hehe..later2 story best2 plak..

p/s: mood holiday suda mari..hiksss..korang g mane school holiday ni??

Monday, May 11, 2009

aku dan SLE


Assalamualaikum..

dh lama aku xupdate pasl sakit SLE aku n HERBALIFE..
korang pelik ke tb2 aku nk story pasl SLE..hehe..ade yg dh tau n ade yg blom..yg aku ni adlh slh sorang pesakit SLE tu..xyah la aku story SLE tu ape..sbb aku dh buat n3 pasl SLE ni dulu..ala korang klik je label SLE tu..ha adela story nye..rsnya sape yg ade kaitan je yg akn baca n3 ni..tp xkisahla..aku just share jek..maybe dlm byk2 readers tu ade yg senasib ngn aku kan..sharing is caring tauu:D

ok..aku nk update sket la perkembangn SLE aku & HERBALIFE.. b4 tht, my big pleasure to congratulate my sister coz she already jumped 1 step upper than me -> supervisor level which means she was entitle for 50% discount on any herbalife product’s purchase...lawan tokeh ni..mula2 aku kenalkn dia ngn herbalife ni..mati-matian dia xnak..siap kondem aku lg..kata kwn dia consume herbalife tp xde effect..mahal la..dan bmcm 1001 alasan..dgn usaha gigih aku..n dia pn nmpk result dr aku..br dia decide nk jgk.skang ni dia plak yg lebey..ekeekke:D.. . pheww**..50%.…byk tuh..aku pn tumpang senang ler..sbb dpt beli sparuh hrga utk mkn sdiri..ok aku xnak story pasal produk..sape2 nak tau pasal produk bole klik
sini


so..as last checkup (6/4/09) ngn doctor SLE aku (Datin Chin namanya)..alhamdulillah SLE aku dh negatif (ds-DNA antibodies)..n reading nye adlh 13 (normal range 2-15)...
  • October 08 -> diagnoseed confirm aku ade SLE..reading 53..dh kuar butterfly rashes, bgn pagi...sendi sakit2..tgn xleh nk genggam..mata kabur mcm org rabun..(aku dh siap buat spec rabun..)..doc. bg prednisilone 2 tablets..
  • November 08 -> check up..SLE still 53...starting consume herbalife
  • 1 December 08 -> check up..SLE reading reduce ke 33..SLE still active dlm darah aku..
  • 11 January 09 -> check up...SLE reading reduce to 29...SLE still positive
  • 16 February 09 -> check up..SLE reading 27..SLE still positive
  • Mac 09 -> aku xsempat buat blood test ..skip check up..ekeek:D
  • 6 April 09-> latest check up..aku dpt berita gumbira...alhamdulillah..SLE reading 13, ds-DNA antibodies = NEGATIVE..don.reduce prednisilone 1.5 tablet.
  • next check up 8 June 09..

alhamdulillah..berkat sabar n usaha gigih aku (gigih ke..ekek:D)..aku berjaya lawan sakit SLE ni..SLE ni xde ubat..mmg smpai mati aku ttp akn jadi pesakit SLE..it just the matter of control..SLE aku dh brada dlm range normal..so aku kena control je la..nothing much to worried..aku still xleh trdedah pada matahari, kena bw payung jek..tp aku slalu lupe:D

so utk sape2 yg ade SLE cam aku ni..jgn ingt hdp ni dh berakhir..keep fighting for the SLE..redha dgn ketentuan Allah..setiap dugaan ade hikmahnya..n pad sape2 yg kwn or any relative yg ade SLE ni..supportla mereka..mereka ni sgt memerlukan sokongn moral...alhamdulillah jgk sbb usaha aku cuba consume herbalife mndtgkan hasil dan manfaat..sume ni dgn keizinanNya..semua yg berlaku mmg dh ditakdirkan tp kita sbgai hambaNya..kena usaha dan tawakal...dont give up :)

ok next, my hubby improvement..i think not so much differ frm the previous update..(refer here) …aku sgt bersyukur sbb xyah risaukan sgt dh pasal darah tinggi dia tuh..BP dia dh normal cam org lain..Alhamdulillah..

haaa..jgn xtau...aQeel also consuming herbalife..hehehe..ms mula2 minum shake tu..aQeel la yg paling sibuk nak jgk..everytime kitorang shake..dia akn dtg nk jgk..so after get the consultation..it is safe to feed the baby up to 1 yr to consume herbalife....actually its good to help the development of kid’s brain..mencerdas dan mencergaskan otak.. ;)..harp2 anak ibu nih jd bijak ler yek...(sakng ni pn dh terlebih2 bijaknya..xlarat nk layan..adeiii:p)

so tu je la update kali ni..nnti kalu ingt aku update lagi ok..ekekek:D


~aku sgt suka peach TeaMix~
p/s: SELAMAT HARI IBU utk sume mommyss...erkk dh trlmbat ke aku wish ni..ekekk:D
p/s2: thanks for the wish n support (psl last n3 tu..)hehe..aku xbuat as per plan..xbaik aniaya org kan..:)
p/s3: smile n leave peacefully....

Monday, January 26, 2009

before n after ... cont'd


Assalamualaikum..

perhaps can see the different clearly than before :)


both 2 pictures above was before consuming HERBALIFE which is last RAYA = mata nampak mcm br lps nangis..sembap..n ade butterfly rashes kat pipi..can see the red-sih kan? that was some of SLE symptom..it would definitely attack eyes..at first i thought i was rabun..dah siap buat spec lagi..after checkup wth specialist then i know it was SLE symptom that affected my eyes. (click at the photo to enlarge)


and another 2 pictures was after which is i took the photo yesterday (can see the date on the pict. :D) even tho my eyes still sepet (naturally ok!) tapi xdela nmpk sembap cam br lps nangis..butterfly rashes pn dh gone!




Friday, January 23, 2009

before n after ...


Assalamualaikum..

firstly, sorry bcoz i couldnt find the best picture to show my changes after consuming herbalife..its not bcoz too many picture to be selected but i just realize tht i dont have many photos tho..insyaAllah i'll try to get more:) i olwiz forgot to snap a picture of me n hubby..we just suddenly remember when we're at home while watching tv..but due to our tight schedule in front of the tv, we decided to take our photos when we're ready to outing :p...thats why we dont have many photos..so many excuses:D rather than nothing, here u go my before n after HERBALIFE piccas :D (malu plak nak tunjuk gbr before tuh:D)




~before- it was a month before consuming HERBALIFE..at tht time, my SLE getting worse..look at my eyes..sembap kan..it is bcoz of the SLE symptom..i admit my eye was very sepet but still can see the different tau~

~after - hehe..even my eye still sepet..but pls take note tht it was sunny..previously, if it is sunny, my eye totally nmpk 1 line jek..i can't open further~


p/s 1: i'll try to get more piccas before n after (before byk sbnrnya..tp since nak compare kan..so kena la amik gbr after lebih sket :D )


p/s 2: eh eh..dh mcm alyn la plak..ade ps1 ps2:p jgn marah eh alyn:D
actually just want to announce tht my BIL will launch his new website and its all about HERBALIFE n making money wth HERBALIFE..and lots of info about HERBALIFE..once the website is up, will let u know the address..tungguuu!! :)


Friday, December 19, 2008

SLE

Assalamualaikum..
i read bout ths article in Utusan Malaysia - Mega, Tuesday 16 Dec. Title "Pesakit SLE perlu sokongan moral". i am attached to the SLE..so out of 12,000 SLE's, i am 1 of them:D ..i would like to share the info wth others especially for those who never know about SLE..(in fact same goes to me b4..i just got to know about it:D)..lets go through what the article wrote about.
Sejak beberapa thun lalu, masyarakat semakin menyedari kewujudan penyakit Sistemik Lupus Eritematosus (SLE) atau lupus yg mampu melumpuhkan kehidupan pesakit dgn simptom2 berbahaya termasuk mengalami serangan apabila terdedah kepada cahaya MATAHARI. Di M'sia, tdpt >12k penghidap SLE dgn 90% wanita, 10 lelaki + kanak2 berusia antara 15-50 thun. Ia merupan penyakit AUTO-IMUN kronik di mana sistem imunisasi tubuh mula menghasilkan antibodi yg menyerang bhgian tubuh yg sepatutnya dilindungi..Auto-antibodi berkenaan mengakibatkan keradangan sehingga merosakkan organ badan sprti sendi, kulit, buah pinggang, paru2, saluran darah & otak. Naib presiden persatuan SLE Malaysia (PSLEM), Dr. Yeap Swan SIm berkata, simptom yg melanda setiap pesakit berbeza mngikut individu. namun setiap satunya memerlukan rawatan pengurusan dan sokongan moral sbg peransang. Buat masa ini TIDAK ADA ubat khusus utk SLE mlh sejak 40 thun lalu, pakar saintis masih blom menemui kaedah rawatan terbaru utk mengubatinya.Sbhgian ubat yg digunakan utk mengurangkan simptom SLE bole mnimbulkan kesan sampingan mudarat. Ini kerana pengambilan corticosteroid (PREDNISILONE) dan immunosuppresant utk jangka panjang bole mngakibatkan komplikasi sprti darah tinggi, diabetes, katarak dan kerosakkan anggota badan lain selain monopaus awal seterusnya kemandulan.Kajian membuktikan bahawa 15%-20% peskt tdk mengalami kesan sampingan klinikal dgn ubat2an secara minimum. Tahun lalu, Walk-A-Payung berjaya diiktiraf oleh m'sia books of record sbgai larian berpyung terbesar drpd org ramai.Payung yg dibawa oleh para peserta sejauh 2km melambangkan sokongan thadap penghidap SLE yg bole diserang bila2 masa jika terdedah kepada cahaya matahari...etc.."
well..thats part of the article..
my specialist olwiz remind me to bring along the payung whenever and wherever u go..UMBRELLA IS NOW UR BEST FREN..kihkihkih..sounds funny but thats the fact.. at 1st i can't accept the fact and i dont want to believe tht i hv the SLE..but now i slowly accept it openly..it is a fate tht i cannot run off. i know that i am special..thats y Allah choosed me to be tested. luckily i still have a very very caring n loving husband..thank GOD i am married to him..he olwiz by my side whenever needed..thanks so much hubby..i love u so much..no words can describe my feeling..plus my family n frens..thanks so much..i never forgot to pray and asked from ALLAH to permits whatever ive done as my usaha to cure the SLE..may HERBALIFE change everything i wish for..
olwiz remember, when u are choosed by Allah to be tested, it means that Allah do love u so much n HE care on u...HIS test will NEVER go beyond our capability..setiap yg berlaku pasti akan ade hikmah disebaliknya....so enjoy urlife..;)

Friday, November 28, 2008

h.e.R.b.a.L.i.F.e.

Assalamualaikum..
hmm..looking at the title i think most of people know what it is really.just want to share my very little experience regards herbalife..
first of all..let me start wth my problem that i never thot will bring me to know about herbalife..
sept 08: confirmed by doctor tht i hv an immune system problem which my body was auto immune..its called SLE. my antibody was fighting wth my antibody itself and to prevent from the antibody become more active, i hv to take prednisilone..for those who doesnt know what is prednisilone, it is a drug..(err tu bahasa pasar la..but to show its the worst and the only solution for those who had a problem just like me)..there are more bad effect rather than good effect but i have no choice. or else, the SLE will affect my kidney and others internal organ..scary huh..

if i took prednisilone for long time of period i hv to take other suppliment for my bone because the side efect was it would attacked your bone..so just imagine if i continously take the prednisilone, how many pills i hv to take for the whole life..another side effect is prednisilone will make you fat..y? bcoz it makes you feel hungry most of the time.~~ so once i got this confirmation, i am very2 demotivated..unsangkarable i hv that desease..fyi, the SLE was attack women expecially..bak kata org.. 10:1 which is in 10 women wth the SLE possibility for men to get it only 1..so..i start to searching any alternative for me to cure (even not 100% but at least rather than doing nothing)..and..the story about herbalife came out in my office (when i was at ITD). my colleague was taken the product..but for purpose to diet..and then only ive got to know its not only for diet purpose.. so i decided to try it..2 in 1..main purpose is to get rid of all pills..no pills for the whole life..sambil tu bole kurus jugak:D ...so thats a little bit info how i get to know HERBALIFE..

since its already 510pm..almotst at the end of my opis hour..hehhee..i continue in the next entry on the details of my changes;)

Related Posts with Thumbnails
 
Designed by Whitey Mommy